Why do I have ankylosing spondylitis despite treatment?

Question

Hello doctor,

Ankylosing spondylitis (AS) has taken such a toll on me that I can barely recognize myself anymore. My spine is curved like a question mark, and it is hard to believe that I was once a professional dancer. I have lost all my muscle mass and flexibility. I am in constant pain, and even something as basic as breathing feels excruciating.

I have tried every alternative treatment I could find, hoping for some relief, but nothing has worked. To make matters worse, my insurance denied me access to a new biologic therapy that might have made a difference. Now, the wheelchair has become my only option.

Please help.

Answer 1

Hello,

Welcome to icliniq.com.

I understand your concern.

In my opinion, I would recommend that you continue your medications as they help limit and modify the progression of ankylosing spondylitis. Secondly, I encourage you to engage in mild activities, such as gentle stretches and exercises, to maintain your current range of joint motion. Gradually, you can progress to improve your muscle strength. As you build muscle strength, you will notice improvements in daily activities, a reduction in further deterioration, and some improvement within the limits of your condition.

When it comes to managing joint pain, medications combined with the application of warm packs can be very helpful. Moving your joints within their available range and gently stretching the surrounding muscles can help maintain flexibility, improve range of motion, and alleviate pain. Make sure to stay warm and avoid prolonged exposure to cold temperatures.

If possible, consider engaging in pool-based activities in a temperature-controlled, warm pool. Functional exercises and gentle movements in the water can greatly improve your overall well-being. Always proceed cautiously and with support—seek assistance from a professional or caretaker if needed. Simple activities like walking in the pool and stretching can be highly beneficial. Additionally, try passive stretches by staying in positions that promote stretching. For instance, lying on your chest for a while may help, but only do this if you can tolerate the position comfortably.

I hope this advice is helpful to you. Please feel free to reach out to me if you need further assistance or guidance regarding this.

Thank you.